My Personal Multiple Sclerosis Diagnosis Journey

Early Exposure to MS

I grew up watching my grandfather battle multiple sclerosis. From a cane to a wheelchair, then to a bed, his decline spanned decades before effective treatments existed. I helped care for him, learned about ventilators, and saw the toll the disease took on our family.

His struggle inspired my aunt to become a nurse and motivated me to support MS research through school read‑a‑thon contests.

First Symptoms and Diagnosis

In my early 20s I began falling repeatedly—first off my bed, then on the ice during hockey practice. A team doctor mentioned MS, but said I was “too young.” After a series of appointments, numbness, and a week in the hospital, a neurologist finally called to tell me I had multiple sclerosis.

Sharing the News

Calling my parents was the hardest moment of my life. I feared repeating the pain they endured with my grandfather. When I finally told them, my father cried—a moment I’ll never forget.

Living with MS

Initially I felt confident I would not end up like my grandfather. I started disease‑modifying therapy quickly, but a severe exacerbation hit my vision, right side, and hands, leaving me unable to feed myself. At 22 I needed help with basic tasks, and the reality of my future sank in.

Despite the setbacks, I built a solid career until my mid‑30s, when accumulated damage forced me into disability at 35. Modern medications have slowed progression, and I believe earlier access to today’s treatments would have changed both my and my grandfather’s outcomes.

Celebrating My “MSiversary”

Each year I mark the day of my diagnosis with a “MSiversary” party. Turning a painful milestone into a celebration gives me a sense of control and fills the date with joy and fond memories.

About the Author

Devin Garlit lives in southern Delaware with his senior rescue dog, Ferdinand. He writes about his lifelong experience with MS and shares his journey on Facebook and Instagram.