Endometriosis Resources: Trusted Medical Journals, Organizations & Patient Communities

Navigating endometriosis requires reliable information. Below are vetted resources for patients, caregivers, and clinicians.

Peer-Reviewed Journals (Highest Evidence)

• American Journal of Obstetrics & Gynecology (AJOG) – Leading OB/GYN research.
• Human Reproduction – ESHRE flagship; strong endometriosis focus.
• Fertility and Sterility – ASRM journal; infertility & endometriosis.
• Journal of Endometriosis and Pelvic Pain Disorders – Dedicated open-access journal.
• Best Practice & Research Clinical Obstetrics & Gynaecology – Thematic reviews.

Professional Organizations & Clinical Guidelines

• ACOG (American College of Obstetricians and Gynecologists) – Practice Bulletins, Committee Opinions, patient FAQs.
• ESHRE (European Society of Human Reproduction and Embryology) – Gold-standard guideline (2022 update).
• WERF (World Endometriosis Research Foundation) – Global research collaboration, EPHect data standards.
• Endometriosis Foundation of America (EndoFound) – Advocacy, education, surgeon directory.
• NICE (UK) & RCOG Guidelines – Evidence-based clinical pathways.

Patient-Centered Organizations & Support

• EndoWhat? – Documentary, provider finder, school curriculum.
• Nancy's Nook Endometriosis Education – Curated FB group (35k+); expert-moderated, evidence-based.
• EndoBlack – Centering Black women's experiences; provider directory.
• Queer Endo – LGBTQ+-inclusive resources.
• MyEndometriosisTeam – Social network with condition-specific matching.

Clinical Trial & Research Registries

• ClinicalTrials.gov – Filter by "endometriosis" + location.
• WERF EPHect – Standardized phenotyping for research participation.

Critical Reminder

Online resources complement—never replace—specialist care. Seek a fellowship-trained minimally invasive gynecologic surgeon (MIGS) or reproductive endocrinologist with endometriosis expertise. Bring organized records, imaging, and a symptom diary to appointments.