How to Find and Join Alzheimer’s Support Groups – In‑Person, Virtual, and Starting Your Own

Alzheimer’s disease is a progressive brain disorder that affects roughly 6.9 million Americans aged 65 and older (Alzheimer’s Association, 2024). Without new treatments or preventive strategies, that number could more than double by 2060. As prevalence rises, the need for reliable support—both for people living with the disease and for their caregivers—has never been greater.

Why a Support Group Matters

Consistent medical care can slow symptom progression, but emotional and practical support is essential for maintaining mental health, reducing isolation, and improving overall quality of life. Professional, peer‑led groups have been shown to boost mood, provide education, and empower caregivers to deliver better care.

In‑Person Options

To locate a local group, start with these trusted resources:

• Alzheimer’s Association: Use the Support Group Locator to find meetings at churches, health centers, or mental‑health offices.
• State and local health departments: Many offer free or low‑cost gatherings for patients and families.
• Community bulletin boards: Check libraries, senior centers, and newsletters for advertised meet‑ups.

Virtual and Online Communities

Online groups provide flexibility and safety, especially for those who cannot travel or wish to avoid exposure to illness.

• Synchronous sessions: Live video meetings where participants join at a scheduled time.
• Asynchronous forums: Message boards and chat rooms (e.g., ALZConnected) that let you post whenever it fits your schedule.

The Alzheimer’s Association operates free message boards through ALZConnected, including the “I Am Living with Alzheimer’s or Other Dementia” forum for patients and the “I Am a Caregiver” forum for family members. Remember that these are public spaces—avoid sharing personal health details and always verify advice with a medical professional.

Social‑Media Groups

Facebook hosts numerous caregiver and patient communities. While convenient, treat them like any public forum: protect privacy and corroborate information with trusted sources.

Helpline Support

For personalized guidance, call the Alzheimer’s Association toll‑free helpline at 866‑232‑8484 (or text 646‑586‑5283). A trained social worker can help you navigate local resources, symptom management, and group options.

Starting Your Own Group

If no suitable meeting exists in your area, consider creating one:

• Launch a free Meetup group and schedule regular gatherings.
• Post flyers at community centers, churches, or local newspapers.
• Use Facebook’s free group tools to moderate discussions and ensure a safe environment.

Attend an Event First

Many organizations offer one‑off webinars, conferences, or virtual workshops that let you sample the community before committing to a regular group. The Alzheimer’s Foundation of America, for example, hosts daily virtual classes, arts‑and‑crafts sessions, and movement activities—check their monthly calendar for details.

Key Takeaways

• Support groups—whether in‑person or online—are proven to improve mental health for both patients and caregivers.
• Professional‑led groups provide the most reliable education and emotional assistance.
• It’s often beneficial to participate in more than one group to address different needs.

By connecting with others who share your experience, you’ll feel less isolated, more informed, and better equipped to manage the journey with Alzheimer’s disease.